Today was ok. I hate to wish time away, especially for Slade. BUT I am happy to say that one more day has come and gone. It sounds horrible to even say that. I am grateful that we have her. I am grateful that I get to have these experiences with her. We are going to learn/grow so much. Let's just say I might be wishing this month away.
The Stevensons kept Slade last night so that I could get some sleep (well only have to deal with one crying child in the middle of the night). She actually did ok (besides battling for 40 minutes about taking her medicine). She woke up at 3:00 to eat Cafe Rio. As I got it all ready, sat her down with the food in front of her she looked at me and screamed, "Get away, go away mom!" I quickly sat on the couch so I could still see her and her see me. She then yelled, " I said, GO AWAY!" So I sunk down on the couch so she could not see me. When she was done eating, she requested Yo Gabba Gabba. I told her no so she said, "Carry me to my bed to go to sleep!" She slept until 6:30 and requestd cafe rio once more. I am pretty sure I thought I would never hate the smell of Cafe Rio, but I might end up hating it.
Slade came back home around 8:30 and Taleah was loving that for a minute. Until she realized she wanted my full attention. We ended up going to Grammy's at 10:00 so I could go to IHC and get things worked out.
She was really whiny all day and wanted to be carried and held all day. She was asking for Grandma and Grandpa Stevenson all day long. She wanted to be at their house. Grandpa picked her up at 3:30 and she has been there all night. She even decided to have a sleepover. I agreed to get a good nights rest so that I can stay healthy. I am hoping she does ok. There is no telling how she will act in the middle of the night. Praying she does ok. Good thing I am one phone call away and a 2 minute drive.
I have no idea if it is normal for her to be so tired. She doesn't look pale like before, just tired and lazy. Praying that her little body is just busy fighting off the cancer that she needs her rest (lack of energy).
Those dang steroids are kicking my trash. And hers too! More her though... poor thing!