Day 9-13

Things have been fairly low key, which is great. She has actually been more herself and had energy. It's amazing what those blood transfusions can do for these kids. I can't even tell you how amazing it is to see her personality coming back.

 

I have been struggling with my feelings regarding my other kids. I feel very blessed to have so many people that love us and our family. They are well cared for and it makes a big difference.

We will continue to do what we are doing and try to feel "normal" and be "together".

 

 

We have been expecting the news about the siblings next week.

We decided that Tait missed the curtain call initially (miscarriage before twins) because she was talking too much. We are so glad that she decided to join Sloan for the party. It looks like Taleahs "mini me" is a match. They will now test the cord blood to make sure it is a good sample and will work for the transplant. Please pray that the cord blood will be a good sample and that we can move forward towards a transplant.
Don't believe in miracles. Rely on them.

 

There have been so many people serving us. Bringing dinners, bringing treats, sending gifts and words of encouragement. We appreciate it more than you know. Treena (aunt grammy) has been very entertaining. Taleah adores her and enjoys her company. Now that she is feeling well enough to party with her, she is requesting a lot of her time.

 

One thing that Taleah has wanted to do before her hair falls out... have it "light" like Elsa. I figured it was a valid request and we would make it happen before we shave her head. Treena came to the rescue and made her dreams come true.

 

Having Slade here when she is actually feeling pretty good was much better. They were happy to see each other and enjoyed each others company. It made my heart so happy. She could only handle him for a couple of hours... just like they are at home. Some things never change.

 

This week she will have an another lumbar puncture, chemo in her spine and through her PICC line. Oh and let's not forget the steroids. We start those on Wednesday.

We also meet with the bone marrow team to discuss pros and cons, the cord blood and the plan. I am extremely nervous but hoping to get some answers and some peace of mind.

 

What a long journey we have, but trying to be positive and take it one day at a time.