Friday, October 28, 2011

Consolidation- Day 26

It has been so nice to have the week "off" from hospitals (minus Slade's). I have been trying to enjoy the last week of this phase. It has been pretty good. She has been awesome minues the onset of headaches this last week. It freaked me out to be honest. I didn't know what was causing them and they were happening randomly. She was eating, drinking, sleeping and taking the same meds she has been taking the entire month. After speaking the nurse at PCMC, she thought her hematocrit could be low. Some other moms said their kids get them occasionally. The sad thing was the fact that she didn't want ANY extra medicine. She would pretend it was gone to avoid some meds. It broke my heart every time she burst into tears and grabbed her head. It usually lasts about 10 minutes and then she is back to normal. I am still curious and wanting to talk to my oncologist about. Sounds like I am being overly cautious... and maybe I am.

Our week off has consisted of a lot. Texas Roadhouse did a fundraiser (by some co workers). I can't even tell you the love we felt that night. AMAZING! We felt love from friends, co workers, family and complete strangers. I wish there was a way to thank every single person that has helped us out but there is no way. I hope people know that we are extremely appreciative.

I have been more of an emotional rollercoaster this week. I have been having a bad attitude... over a lot of things. One night in particular was rough. Scott was gone (football play offs preparation), Taleah didn't want to take her meds, Slade was extra whiny, my house was a mess, laundry to be done and my body was tired. That says it all... terrible night. I had a lot of emotions that night. Unfair, scary, anxious, mad, sad... I had it all. I just kept thinking, "This just sucks!" Bad attitude... I know. It could be much worse. I am blessed. Just a moment, well really a night.... and kind of this whole week. I feel better now. One day at a time.

Taleah requested Chloe and Ashley to come over for the CBC (blood draw). I was apprehensive at first because (1) I didn't want Chloe to be freaked out if Taleah cried (2) I didn't want Ashley to be freaked out (3) I didn't want to make it harder for Nurse Jeanette. Turned out that it was a good decision. Ashley kept Slade from crawling on top of us. Taleah was pretty brave and hardly cried. We made it "exciting". Ashley distracted Taleah with lots of songs. Hmm... good thing Ash was there or I know we couldn't have done it. Also, Chloe watched intently as her port was accessed. She didn't even flinch. Glad we made it through.

WBC 2.7

RBC 3.47

Hct 31.7

Plts 265,000

ANC 1300

Good enough to start the next phase. Like I have said a million times.. I am really nervous. I hope she handles it well and doesn't have crazy side effects from the new chemo. They will be trying to drive her counts down without making her neutropenic... hoping that doesn't happen or we will be in the hospital some more. It's all part of the process... that's what I keep telling myself. Off to SLC!


  1. No need to feel guilty about having a rough week. All moms have them when their babies are healthy. You are a normal mom experiencing a really rough time, enough said! You continue to smile through it and your kids look happy! That's what matters most. Keep your chin up! We love and pray for you guys!

  2. Hope everything goes well tomorrow. Love you all!

  3. Thanks for the update...hope there wasn't any pressure! It was good to see you guys the other night- if you ever need anyone to go with we are always down for a little PF.