Sunday, November 20, 2011

Interim Matintenance- Day 21

I was really wanting to switch her chemo until Monday for a few reasons...
1- I wanted to give her body more time to recover before the next dose

2- Then we would be able to get back on track for Mon visits at PCMC

3- Scott was coaching the championship game and I wanted to go

It turned out that we couldn't switch and needed to keep it on Friday.

It was then a HUGE rush to get Jeanette to my house to access her port to check labs. (I was working) My mom took her there, accessed the port, and got things moving.

I was bummed because we had it all planned out to leave the kids with my inlaws, enjoy the game and enjoy a night away and a little bit of time with Scott.

Nurse Heather informed me that we could actually do the chemo as early as 7:30 am and then I could get on the road with my fam. I was nervous because I didn't want to leave her right after chemo. I was nervous (as usual) because her ANC was only 756 and it needed to be 750 to increase her dose... I thought that maybe they wouldn't increase... but they did. I am not sure she will make counts for the next visit. Time will tell.
She did great during the chemo. We were there for a total of 2 hours. It was quick and she loved the attention from nurse Heather.

I felt like a terrible mother to even think of leaving, but I would only be gone for 24-36 hours. It usually doesn't hit her until at least 24-48 hours after. I knew she would be in good hands (Stevensons). I was still nervous, but went ahead and left. Maybe I am a bad mom for leaving, but she did great while I was gone. I had them stay on top of the zofran insead of waiting until she was sick. They also gave a dose or two of the oxy when she complained of a headache.

She had a blast at their house as always. Slade was the normal crazy boy that he is. They kept me updated on her progress. She LOVES sleepovers at their house. They were so nice to keep them especially right after chemo. They knew it meant a lot to me to go and support Scott (after such a long football season). We came home to happy kids and our laundry done. Wow. Maybe I should leave more often... kidding.

She has been acting pretty good. I think staying on top of the medicine has helped. We play at home most days. We make occasional trips to famlies' houses and a few close friends. As long as people are healthy. We will have to be much more careful for the next 5 months. No more slacking!

We did go to the Jubilee of Trees on Sunday morning. We were told that it was a time that there were few people there, and they were right. We still had her wear a mask for most of the time and some gloves just in case she wanted to touch stuff. She did great though and behaved.

Her little buddy Chloe was so great and not even phased by the gloves and mask. She still wanted to hold her hang and look at the trees. That's a true friend right there :)

Taleah LOVED looking at the trees. She just wandered staring at all of the trees.

We LOVED hanging out with daddy. Now that football is over we get to spend much more time with him. We are so glad!

Santa was not an option. This was as close as we could get. I thought one more year and she would be over it. Nope.

I am EXTREMELY nervous about the holidays. All of her cousins are coming down for Thanksgiving. She LOVES playing with them. It is hard because she can't be around sick people. We hate being a burden/downer on events. I don't want people to feel like they can't do stuff because of us.

We will make the best of it. Praying for good health so we can be a part of the festivities.


  1. Don't feel bad for a second about leaving. You need some "you" time too. And having that time allows you to be a better mom in those moments of need. It recharges your batteries so to speak. Glad you got away and I hope you have a great Thanksgiving!

  2. She looks so good and so healthy, you'd never guess she has cancer. You are in my prayers daily.

  3. It's good to hear that the medicine is helping her to feel better. She looks great! I don't think that you're a bad mom to leave. You need to do things for yourself also.

    By the way your family pictures are beautiful. I love the one of Taleah and her little brother on the seat. They look so tiny on the seat.