Thursday, December 29, 2011

DI- Day 8

Wow, what a long 8 days. Poor girl has been miserable the majority of the time. These dang steroids magnify it all. She did have her last dose last night. YAY! Well, last meaning she has 7 days off and then 7 days on again (high dose). Then of course she will have them the first 5 days of every month. She has been a trooper and I think the key to getting through this is stayin up on the meds. We did for the first 3 days following chemo but then slacked off. I have decided that there is no reason for her to suffer.

She had clinic here for the vincristine and doxo today. The check up with Marsden yesterday didn't go over well. She was tired, emotional and cried the whole time. I think he hated it. He felt bad, but it was nothing personal. Dang steroids (I say that a lot).

I just have to say that we are grateful for the constant help with Slade and Taleah. Our families rock!!

Good thing clinic was with nurse Heather. Taleah LOVES her. Grandpa Stevenson was able to see why. She is AWESOME!! I had to bounce back and forth because I was working downstairs. I was able to be there at the beginning and the end. It was hard (and the first time) that I wasn't there through the whole thing. It was good for daddy though. He enjoyed it. She was brave, tired and endured it all.

(Grandpa didn't know I was taking a picture, but he was great to help her through it all)

Then, he was great to take her home and pick up Slade (my mom ended up getting sick). Rob watched them until I was done with work. Great family!!

Few of the Stats

ANC 3000

Hct 37.9

Hbg 12.8

I can't remember the rest. They were pretty good though. Steroids could have messed with the numbers a little, but I am expecting those numbers to drop in the near future. Along with the hair to come out.

She hasn't been the happiest. She doesn't have much energy, but not quite as miserable as last time. Trying to stay up on the meds and hoping it helps.

She is complaining of her mouth and throat hurting. I am fearing those dang mouth sores. I have got to figure out what to do for her. I hate the side effects of chemo. As if having cancer is not bad enough.

We did enjoy the warm weather today and I think she loved being outside. I can tell she is already feeling trapped and it has only been 8 days.

I have come to terms (I think) that there is NO physical way that I can keep up. As in keeping the house somewhat picked up, cleaning, laundry and no cooking. It is taking all of my energy to physically and emotionally care for my kiddos. I do need to keep things sanitized for Taleah, but keeping up is not in the plan for the next little bit. Praying that these 2 months will go smoothly and quickly. Kind of wishing time away.. is that bad?


  1. I'm exhausted just reading your posts, I can't imagine how exhausted you are! You're so strong! I'm so impressed with your continuous strength, courage, and faith to press forward. You will be blessed and so will Taleah. Glad Christmas morning was better than expected and hooray for a week off steroids! Nasty things. Get some rest and here's hoping to a better week and a Happy New Year!

  2. If there is ever anything I can do please let me know. I am more than willing to come sanitize your house for you. Don't sweat the small stuff, no one cares if you take sme time off of cleaning! ;)

  3. she is such a beautiful little girl! Enjoy your kids being kids while you can cus they grow way too fast, it's not fair! You are a wonderful mom and I admire your strength!

  4. I know after my dad passed I got so sick of hearing how strong I was because it was the last thing I felt. But I truly admire you for all you are doing for your kids to make sure they still have experiences at Christmas. No one will care if your house gets messy sometimes or your laundry gets behind. In fact, it gives people a way to offer help. Your kids are really lucky they have such great parents, grandparents, and aunts and uncles that love them so much. You can see how loved they feel in all the pictures. I love following your journey and wish you all the best in the new year to come.

  5. Was a little behind, but just got all caught up. Tears. She is amazing. Your family is amazing. YOU are amazing. I'm so lucky to known such inspiring people. In my prayers. Always.

  6. Just so you'll know. There are many prayers being offered for you over here in Samoa. Some in English, some in Samoan.