Being off steroids has made a huge difference. She is pretty much her normal self. Still having tantrums but I am hoping that is normal for a 3 yr old. Her little personality is really showing through. I am trying to enjoy every minute of it!
These two still get along pretty well. They are great little buddies but they sure can fight. Again, sometimes I want to blame the steroids but I am afraid it is just normal sibling behavior.
There were a few times that she would complain and I could tell she didn't feel well. She only asks for someone to sleep with her when she is not feeling well.
I didn't really talk to Dr. Barnette about letting her go to church, gymnastics, ect. He is usually pretty leniant if he thinks their counts are pretty good. Nursery has been a little bit scary but I usually go in and be the germ monitor. Luckily it is a sernior nursery. She is LOVING cheer, gymnastics and being social. I think it really makes all the difference. She is getting her muscle back and coordination. I think it is the best thing for her. Oh and that cute little bum.
Swimming and enjoying the outdoors too. She loves swimming and Slade doesn't. Should make for an interesting summer!
The Monday after the relay she slept until 10am. That never happens. Her temp was low and she was tired. I figured she had a low hematocrit but I was going to watch her and see. She is not due for a blood draw for a few weeks. She ended up getting more energy and I am hoping it was just exhaustion from the weekend.
Sadly, Slade loves having his temp taken. He thinks it is entirely normal. The doctors doesn't scare him either. He actually loves going there.
We are coming up on a decision. It's making me a little nervous. I haven't talked to Dr. Barnette yet. There have been a few things that seem like signs to me, but we still need to sort it out. Still praying and we appreciate all of the prayers and encouragement from all of you. Thank you!!