I was anxious to get this day/week started. We woke up early to be at the airport by 5:30am. I was hoping we would make it to PCMC by 8 and praying that Tavia would be at the airport on time. She was early and we made it with 15 min to spare. The moment we pulled up proved the anxiety that Taleah was experiencing. She was doing her best to be brave and happy but I could tell it was getting to her.
Tavia was a good distraction, but Taleah would hardly crack a smile for anyone. Even the people she loves the most there.
She didn't cry getting her port accessed. They had a hard time getting blood back. I was so nervous! It is different now that she only gets labs drawn once a month, but I automatically thought the worst. A little heparin and we were good.
Her counts came back perfect. Her weight has gone up a little so they barely increased her daily chemo pill. I was thrilled that her body is doing what it's supposed to do and she is handling like a champ so far.
She knew the "smiley room" was coming and it was really getting at her. We had a new distractoin... making pink and purple snow. It kept her occupied until they were giving her the sedation meds. She wanted to know when they were going to give them to her so she could be ready for the dizzy part.
We tried having her close her eyes this time in hopes that it would minimize the dizziness. Poor girl would not relax during the LP. They had to give her a little extra. She is usually out enough that she doesn't even speak. It broke my heart when she grabbed my arm as they were putting the needle in her back and said, "momma!" I know she never remembers the actual poke, but that brought tears to my eyes. Tavia was crying too. It was so sad.
She usually sleeps after when she is receiving chemo. It always makes her nauseous as well. It seems like she throws up sooner and sooner now.
She loves making a wish but didn't have the energy to do it like she usually does this time.
I was glad to have that part done and now it's the steroids. Blah!
She is so tough and brave and truly my hero.
You have such a brave little girl. It brings tears to my eyes. We will keep you in our prayers. - Uncle Bruce
ReplyDeleteahhh- Tosh, I seriously think about you and your little girl all the time. I can NOT IMAGINE having to go through this. You are so tough and so is she!!! Just want you to know you're always in my thoughts and prayers and always wishing you guys the best!!!!
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