She pretty much wanted nothing to do with me today. Anytime I tried to talk to her, looked at her...or was even in the room she yelled at me. Again, I want to blame it on the steroids. She wasn't as happy today unless she was with certain people. This month has been all about keeping her happy and doing whatever it takes. Some think it's crazy, but until you experience it first hand...it's crazy not to give them what they want. I fully plan on implementing a schedule/discipline once the steroids wear off. I will probably give it 5 days. Nothing crazy but some routine/schedule in her life will be great again.
She slept at the Stevenson's last night and tonight she is staying at my parents. I hate feeling like I am not being her mommy, but I stick around as long as I can and then let her go to sleep with them. They are all willing to wake up to do the antibiotics and deal with the night time meltdowns. I wish she would want to sleep at home. I wish she wanted me. But she doesn't...and hasn't for this last week espcially. Still breaks my heart...makes me feel inadequate. BUT it's all about her and what is making her happy at this point.
Scott just took her last dose of steroids (for a while) over to my parents. Oh my heck! I can't believe we made it through the first 28 days. It seems like it's been FOREVER. And I even had help from family. Now if we can just make it through Monday with no hiccups that would be even better.
Side Note... She told me, "Mom, I have a baby in my tummy! Look (as she lifted up her shirt), it's a big baby!!" I laughed so hard. Too funny.
Brielle (her cousin) said, " I love Tia's big cheeks. She has big cheeks."
I have been trying to slide in a few comments about the hair and Leukemia. She isn't getting it and I am not sure she likes the idea of it. She is shedding a lot. It still looks like she has quite a bit, but it's coming fast. I am hoping to make it last until next weekend so we can have family picures taken....hope we can make it work. If not, oh well! After pictures I think we will cut it short and then maybe buzz it... not entirely sure yet. I will keep talking to her and see if she can make a decision...oh the thought makes my tummy hurt.