I can't believe day 6 is almost over. I am so glad. That means 22 more days until she can stop taking the steroids. YAY!
Last night was rough, really rough. She started having nightmares when she heard Scott open her door. She did the same thing in the hospital...only that door opening meant someone was going to check her out/move her around. Breaks my heart that the sound of a door opening triggered the horrible nightmares throughout the night. I ran in everytime and she would yell, "Get out mom! Go away!" Stab to the heart. I am her mommy and I'm supposed to comfort her, but I couldn't last night because she didn't want me to. I want to blame that on the steroids....and I will. Slade also woke up 3 times screaming, but opposite times of Taleah. I ran in everytime, but I was able to comfort him. Scott also woke up once...sleepwalking and asking for a spoon for the chemo and phone call...what the heck. I had to yell at him to snap him out of it and then he threw the spoon down on the counter. I then decided that this night couldn't get worse. I had to keep an eye on him, Slade and Taleah.
The day went pretty well. She wasn't too crazy. She munched on little things all day long. String cheese, wheat thins and cheetos are her new thing. Still drinking lots of water. That dang medicine...I have got to find a solution asap. I tried teaching her how to swallow a pill, but that didn't work out too well. Who would have ever thought that I would have to teach my 2 1/2 yr old how to swallow a pill...? That sucks. I am going to try the syrup route because chewing them isn't working out too well.
I feel like we are getting a better grasp on things and accepting what has been dealt. Doesn't mean I am happy about it. I'm not. Still doesn't seem right. However, things are in a little different perspective now. I kinda see the big picture. One thing I do know...families are everything. Friends are great too and I am so grateful for them but families are where it's at! Our families mean more now than they ever have! They have been AMAZING throughout this entire process (makes it sound so long but it's only been 1 week).
It's been 1 week since the diagnosis. One week down... a lot more to go.
We can do this!