I am pretty sure that this whole medicine thing could put me right over the edge. I have been crushing the pills, putting them in a syringe and mixing it with chocolate syrup. Some days are harder than others with her, but she prefers it any day over the berry medicine (Spetra in luquid form). Last night was particularly difficult. It took about an hour to get her to take it and when she did.. she ended up gagging and spitting some of it on her shirt/chest. Yes, it's a chemo pill and shouldn't be touching her skin. Also, I have NO idea how much of the pill she actually swallowed and how much was spit out. There was no way to know how much more to give/not give her. I wanted to cry at that point due to the fact that it had been a long/difficult day of whiny kids. I know how crucial the medicine is and I didn't know what to do. I ended up just leaving it at that because other kids SURELY spit their medicine out from time to time... I hope. I just didn't want to give her too much. It probably doens' t sound that stressful, but these medicines are supposed to be saving her life. Kind of a big deal. :)
She has been sleeping much better the past week. Now if only her brother would follow her lead. Man, just when I thought sleep could help me out...he has terrible nights and I don't sleep much. Sleep is overrated...that's what I keep trying to tell myself (but it's not working anymore). It is pretty cute though because Scott has been sleeping on her floor every night (per her request). I still keep the baby monitor on. He seems to sleep just fine (says he didn't hear Slade screaming for 1 hour straight last night). I then kept waking up because I "thought" I heard kids crying... so I would get up and ran to the other side of the house and check on both...and neither were crying. My heart would be pounding and I would feel some anxiety. Not sure why. Anxiety is my new best friend... probably not healthy. That could be part of my problem lately... hmmm.
Yesterday, she saw some hair that was shedding and told Taylor, " Silly kemia is making my hair come out!"
Scott told me that Taleah woke up this morning and told him, " I want a haircut." She has been listening as I have been encouraging her new buzz haircut like the other cancer kids and how fun it will be when all of the boys do it too.... and she can be the "only special girl".
It is still comforting to hear/talk to people that are so concerned for her and our family. It means so much. Can you imagine what I would be like without it... a COMPLETE wreck!