Monday, August 6, 2012

I have been meaning to update for some time now but we have been having too much fun being "normal". Of course that can't last too long right? 
She woke up Sunday morning with a headache and I figured it was probably due to the methotrexate pills on Thur nights. It has happened before so I had her drink a lot of water and get rest. We headed to church, lunch at the Stevensons and then had some visitors over to our house. She was a little whiny but still played and partied with everyone. While playing volleyball outside, she felt warm. I took her inside to cool down and re check her temp. It was still a fever so we began the "fever protocol". blah. I was a little more calm because it feels fairly normal. I still worry, stress, get sick to my stomach and all of that. I always worry about Slade and the fact that he may feel abandoned. I know he is being loved and taken care of but as his mom I always feel guilty. I wish I could be in 2 places at once. I wish I would have totally cleaned my house yesterday like I had planned, finished my laundry and played with Slade more. BUT I am here with Taleah and trying to keep her happy. I do love the one on one time with her but I wish it wasn't under these circumstances. 
She has an ANC of 0. Seriously. Pretty sure it has never been this low. I am sort of freaking out! We will for sure be here for at least 48 hours if not longer. If her ANC doesn't come up at all then there is no telling how long we will be here. Her Hct is 29 (which isn't terrible but isn't great), plts are 140,00 which is ok too. Her dang white blood cells and ANC are WAY low. Basically, no immune system. Everything else is checking out so far so they are thinking that her increased chemo pill has caused her counts to drop and then a virus hit her when she was down. Poor thing. 
Scott spent the night with her and she spiked a fever at 4am. Scott said getting her to take the Tylenol was torture and heart breaking. I felt so bad. I got teary eyed as he was telling me. This girl is so brave and strong. I admire her more and more every day.
I must say that people never cease to amaze me. We were scheduled to have out water softener in this morning so as he called I told him I wasn't home because of our hospital visit. He asked if Taleah was my daughter and said he was wanting to do something nice for us and wanted to do it for free. I was speechless. What amazing people. I told him he couldn't do that for us, but he insisted. We will still try and get him something for what he is doing, but honestly there are so many good people. We feel so blessed.
We will keep praying for her counts to come up. We had such a fun week planned. More fun things planned than we have done in a long time. Oh well. I guess we can pray and hope for the best!

1 comment:

  1. Wow, how nice of that man!! Praying for your sweet girl!