Crazy Month- 2nd cycle of maintenance

It's nice to be able to say it has been a busy month without too many troubles. The kids are a handful but it is a lot of fun. It is still fairly warm so we have been able to do some things outside.

 

 

Once she started learning her letters she wanted to learn how to write all of the letters in her name. She contineus to practice but this was her first.

 

Family date nights are the best. She loves having her picture taken and she loves to be the photographer. It is so nice when we can spend an evening together without being rushed somewhere.

 

 

Our monthly visit to Dr. Marsden is always great. She loves seeing him and so does Slade. They are always fighting for his attention.

 

 

Gramps and Grandpa Stevenson are always a hit. For whatever reason... they are both adored by both kids! ;)

 

 

Lunch dates with friends are always fun. Taleah and Slade love being around other kids and playing in a group. I always worry about how this is affecting her socially and most of the time it seems to be fine.

 

Taleah did go to college and experience it to its fullest. She loved it and told me that she would be leaving for college on Friday. I'm pretty sure she would miss me!

 

 

There was one particular night that she wouldn't go to sleep. She loves to stall and postpone bed time. I knew this night was real when she told me she was afraid the ambulance was coming to get her. She had been having a few nightmares and I guess it was about ambulances. She was so scared and sad about what was to come. It freaked me out and I couldn't help but think it was a sign of what was to come. I tried to console her, but I was a little scared myself.

The cheer clinic was SO cute. She loved it and LOVED performing at the game. She wasn't shy at all and asked to do it again.

 

Had to do a comparison of the cheer clinics from last year and this year. What a difference and what a journey. That's one tough girl!

 

Our last time at the lake. Taleah could have spent all day there... Slade not so much. He didn't like being confined. The kid is crazy. It was great to be with family and enjoy some lake time for one last time this year.

 

 

The kids like to be doing things all the time. They seem "high maintenance".... always wanting me to entertain. Makes it difficult to get things done, but people keep telling me that these years go way too fast so I should really enjoy it.

 

The 50th wedding anniversary celebration. Such a fun weekend. Kanab and Brianhead and lots of family. Families are amazing and we feel really lucky to be surrounded by such a great one.

 

 

I knew I wanted some famliy picures taken while her hair is growing in so dang cute. I love the length right now and the adorable curls. People are constantly commenting on how smart I am to cut it short for the summer. Ha. I always nod and agree. The actual taking pictures was extremely hard due to Slade. Glad that we had some turn out though. Love this little family.

 

 

The Big Weekend...

The BYU game to watch Tavia. I was solo that night (without Scott and kids). It was different but so much fun!!!

 

 

The Cure Search walk was amazing!! I can't even explain to love and amazement I felt as I was there. These cancer kids are awesome. They are fighters and truly heros. We had lots of family come and it was great to feel loved.

 Dani Prince was awesome and let us combine teams. She is always supporting us and guiding us in the right direction.

They had all the cancer kids go on stage and say their names. It was very emotional to be on stage and witness the strength of all these kids. I was a mess.

 

 

The best part of going to PCMC is staying at Treenas. Taleah LOVES it. We had lots of playing, eating yummy food, and cheer class. She doesn't mind showing off and proving her strength.

 

We deicded to try an anxiety med this time to help her... well it knocked her out. She was with it enough but made a big difference. The sedation/procedure part went better than it usually does but I didn't like having her "out of it" the entire visit.

 

She is still doing well and moving right along. Her counts were not as high as I expected but they said that is normal.

ANC 600

Hct 36.3

Plts 234

 

I am glad she is progressing but one year away seems so far. I know she can do it because she rocks. I am really  nervous for flu season coming up and then winter. We can do our best to keep her healthy but I don't want to remover her from "life" again. Hoping she can wash hands and stay away from sick people... hoping that can be enough.

Bribery was visiting the train when she finished clinic. She did great so I had to take her. This was her only happy moment of the day.

She threw up on the way home and it was rough. This week of steroids has not been too bad, but it's not over yet. Coming off of them was the hardest last week.

We are still grateful for the love and support. We feel it.

Thank you!